My name is Kate & I have epilepsy: my journey to a diagnosis. (Part 2)

After a nearly a week in the hospital, and a TIA diagnosis, I had been sent home, told to watch what I eat and to get on with my life. (for background info, click back to part 1)

I tried to go back to work, however, the fast-paced and high-stress environment of the Ad agency I worked in wasn’t exactly therapeutic. I tried to pretend there wasn’t anything wrong, yet I continued to have a debilitating ‘episode’ every other day, which would render me completely unable to get out of bed. I wondered how I would get out of this cycle? Would my life ever return to ‘normal’?

My sweet husband watched helplessly as I suffered, he too suffering right along with me. For us, the not knowing was worse than anything a doctor could tell us–we just needed answers.

Finally, and gratefully, my parents intervened. So many times, I think, when a person (or family group) is in the midst of a health-related crisis, they cannot see the next logical step. They need someone who can think rationally to intervene, in love, for the greater good. My mom networked in Grand Rapids to find a renown neurologist who would take my case. We were elated.

Help was on the way. 

The morning of my first appointment with Dr Groff, is crystal clear in my memory. My primary care doctor had prescribed a slew of medications trying to manage my symptoms in the interim–and I constantly felt foggy-headed. I didn’t feel comfortable driving the distance to GR by myself so my MIL was driving me. I can recall sitting on the front porch wrapped in an afghan, feeling every bit as geriatric as I looked. I wondered if I would ever be independent again.

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